Brain tumour support
Information on this website is not intended as a substitute for the medical advice of physicians. All readers should regularly consult a physician in matters relating to his/her health, particularly with respect to any symptoms that may require diagnosis or medical attention.
Looking for online & reliable information to help you in your quest for information about brain tumors?
Diagnosed with a Brain Tumour
Finding out that you have a brain tumour instantly changes your life. Having credible resources at your fingertips is an essential part of starting to navigate the next steps.
We have found some good places for you to start:
Brain Tumour Foundation of Canada
American Brain Tumor Association
Peer created and reviewed resources are also an important part of available information ~ information created by those who have already walked the path you are starting on. Click here for Questions to ask after a Brain Tumour Diagnosis and for a Glossary of new words you might start to hear. Kindly created from lived experience by Emily McIntosh, PhD 2021
Global Organizations and Charities
We have compiled a list of global organizations dedicated to supporting individuals with brain tumours, their caregivers and medical teams.
Get in touch if you have any more to add to our growing list.
Books and Blogs
We have put together a list of great brain blogs and books all about the brain.
The written word is so powerful ~ please give us a shout if you know of any other important books and blogs to add to out list.
Being a Patient
After I was diagnosed with my brain tumour, it was a crazy time. Trying to deal with the physical symptoms and the emotional turmoil that comes with such a diagnosis. I scoured online and my Brain Tumour Facebook Support group for advice on the: What should I ask my neurosurgeon, neurologist, what happens if/and after brain surgery. SO many questions!
When I wrote Two Steps Forward, I decided to dedicate a chapter to the what if’s, the questions and all the areas I thought might help out other individuals who had been diagnosed and their caregivers and families.
When you have more knowledge at your fingertips, it helps you feel more confident in your health and health care – and that is really important.
You can download the chapter here.
Being a Parent
I wanted to write these words for those of you who may have young children when you are first diagnosed with a health condition. It adds another layer to the paradigm. My first thoughts after diagnosis were of my son and husband. Would I live to see my son grow up? As parents, we will do anything to protect our children; it really is a primal instinct.